PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome
PRISMS is dedicated to providing probate definition and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.
Rare Disease Day 2011
PRISMS will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing World Rare Disease Day on February 28, 2011. On this day, millions of patients and their families will share probate fees to focus a spotlight on rare diseases as an important global public health concern.To view the press release of this event, click here. For more information about Rare Disease Day activities in the US go to www.rarediseaseday.us and for world wide activities go to www.rarediseaseday.org.
2012 7th International Conference
PRISMS is in the planning stages for the 7th international conference to be held in 2012. The conference planning committee welcomes all suggestions on potential sessions and events for consideration. You can submit suggestions by going to this online submission form. PRISMS and the conference planning committee are grateful for your support to make the 2012 7th international conference a great event.
"Do Fun Stuff" is Available!
PRISMS is very pleased to announce the release of Ryan Marshall's "Do Fun Stuff" (vol 1) kids album, available exclusively on iTunes. Go to www.dofunstuff.net to hear a full preview of the album and to access links to purchase the album on iTunes and to make a donation via PayPal in support of this great event.This album is a compilation of varying artists who all contributed their time and efforts to craft these kid tunes, all in an effort to drive awareness and funds towards Smith-Magenis Syndrome. 100% of the proceeds from the sale of this album will be used to establish a SMS Research Fellowship that funds a graduate student to study SMS and support the SMS community.
New Research Studies - Participants Needed!
Two new research studies are now under way and need participation from the all the parents (and teachers) in the SMS community. PRISMS is proud of its partnership with professionals in their pursuit to further research of Smith-Magenis Syndrome. Please see the Current SMS Research page for more information and links to participate in the surveys.
SMS Poster - Spread the Word on SMS
PRISMS works hard to get the word out about Smith-Magenis Syndrome - from collaboration with doctors, researchers and professionals to the many families and friends of all the SMS people throughout the world. Spreading awareness of this syndrome is a core principle of PRISMS.With that in mind, PRISMS has created a SMS poster, in PDF form, that can be downloaded from the SMS Poster page. PRISMS encourages everyone to participate in this endeavor to "spread the word on SMS" by handing out this poster to any and all in your communities.