2009 Conference Registration Now Open!
PRISMS is pleased to announce that online registration for the conference is now available. Please click on the link below to:
• Register for the conference
• Make your reservation at the hotel
• Sign up for childcare
Click this link to get started.
2009 Membership Drive:
Please help support PRISMS by becoming a member. For more information on membership, check out the Membership page. Please download and submit a completed membership form*. Thank you for your support!
Promoting SMS Awareness!
To promote SMS awareness, PRISMS is proud to offer this SMS bracelet for sale for just $37.50. Click on the bracelet picture for more information.
New research paper published: Doctors Sarah Elsea and Santhosh Girirajan from Virginia Commonwealth University have published a new research paper on SMS with the European Journal of Human Genetics. For more information see the Current SMS Research page.
Growth data needed!
The SMS Research Team at the National Institutes of Health headed by Ann C.M. Smith, M.A., D.Sc. (Hon) is collecting growth measurements to develop growth curves specific for Smith-Magenis syndrome. If you would be willing to share growth data on your child with SMS, please complete this form*.
Join the PRISMS SMS Discussion forums today! The purpose of the discussion forums is to build a knowledge base for SMS - created by parents, professionals and people affected with SMS. Please click here to go to the discussion forums.
All About Me! One Family's Experiences with SMS by Shirley Dechaine with Ann C.M. Smith, M.A., D.Sc. (Hon) and R. Ellen Magenis, M.D. is a terrific new book written by a mother of a child with SMS. It's available for ordering now and for information on how to obtain this book please email Maggie Miller at maggie@prisms.org.

* Note: These files are in a PDF file format. If you don't already have Adobe Reader, you'll need to download and install this program in order to open these files. It's approximately an 8.7MB download

For Parents of Newly Diagnosed
Was your child just diagnosed and you don't know where to begin?
Start here...Please join PRISMS and fill out the membership form, mail, email, or call it in.
With your membership you will receive a New Parent Packet with important Smith Magenis Syndrome information, parent support contact, and updated PRISMS information by mail and email.

Membership
Please join us. Your membership will make a difference.

For Medical Professionals

For Teachers

Stages of Development & Behavior
Is your child's behavior common for SMS children? See characteristics here...