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Claudia Sierra Connie Brent and Franklin Kyle Tyler
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Welcome to the PRISMS web site!

PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS.

PRISMS, Inc.
21800 Town Center Plaza
Suite #266A-633
Sterling, VA 20164

What's New...

  • SMS BraceletPromoting SMS Awareness!
    To promote SMS awareness, PRISMS is proud to offer this SMS bracelet (click bracelet picture to enlarge) for sale for just $37.50. If you would like to purchase this bracelet please contact Jeri Gawlowski by email at jeri@prisms.org.
  • Save the Date!
    PRISMS is pleased to announce the date for the 6th Annual International Conference "Building Bridges of Hope". Mark your calendars - the conference will be held September 17-20, 2009 at the Reston Hyatt in Reston, VA (same location as the 2007 conference). Check back often as more information becomes available.
  • New research paper published: Doctors Sarah Elsea and Santhosh Girirajan from Virginia Commonwealth University have published a new research paper on SMS with the European Journal of Human Genetics. For more information see the Current SMS Research page.
  • NIHGrowth data needed!
    The SMS Research Team at the National Institutes of Health headed by Ann C.M. Smith, M.A., D.Sc. (Hon) is collecting growth measurements to develop growth curves specific for Smith-Magenis syndrome. If you would be willing to share growth data on your child with SMS, please complete this form*.
  • 2008 Membership Drive: Membership Form*
  • Join the new PRISMS SMS Discussion Group today! The purpose of this new board is to build a knowledge base for SMS - created by parents, professionals and people affected with SMS. Please click here to go to this discussion forum.
  • All About Me! One Family's Experiences with SMS by Shirley Dechaine with Ann C.M. Smith, M.A., D.Sc. (Hon) and R. Ellen Magenis, M.D. is a terrific new book written by a mother of a child with SMS. It's available for ordering now and for information on how to obtain this book please email Maggie Miller at maggie@prisms.org.

* Note: These files are in a pdf file format. If you don't already have Adobe Reader, you'll need to download and install this program in order to open these files. It's approximately an 8.7MB download


For Parents of Newly Diagnosed
Was your child just diagnosed and you don't know where to begin?
Start here...Please join PRISMS and fill out the membership form, mail, email, or call it in.
With your membership you will receive a New Parent Packet with important Smith Magenis Syndrome information, parent support contact, and updated PRISMS information by mail and email.

Membership
Please join us. Your membership will make a difference.

For Medical Professionals

For Teachers

Stages of Development & Behavior
Is your child's behavior common for SMS children? See characteristics here...


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