What's New...
Promoting SMS Awareness!
To promote SMS awareness, PRISMS is
proud to offer this SMS bracelet (click bracelet picture to enlarge) for sale for just $37.50. If you would like to purchase this
bracelet please contact Jeri Gawlowski by email at jeri@prisms.org.
- Save the Date!
PRISMS is pleased to
announce the date for the 6th Annual International Conference "Building Bridges of Hope". Mark your calendars - the
conference will be held September 17-20, 2009 at the Reston Hyatt in Reston, VA (same location as the 2007 conference). Check back
often as more information becomes available.
- New research paper published: Doctors Sarah Elsea and Santhosh Girirajan from Virginia Commonwealth University have
published a new research paper on SMS with the European Journal of Human Genetics. For more information see the
Current SMS Research page.
Growth data needed!
The SMS Research Team at the National Institutes
of Health headed by Ann C.M. Smith, M.A., D.Sc. (Hon) is collecting growth measurements to develop
growth curves specific for Smith-Magenis syndrome. If you would be willing to share growth data on
your child with SMS, please complete this form*.
- Join the new PRISMS SMS Discussion Group today! The purpose of this new board is
to build a knowledge base for SMS - created by parents, professionals and people affected with SMS.
Please click here to go to this
discussion forum.
- All About Me! One Family's Experiences with SMS by Shirley Dechaine
with Ann C.M. Smith, M.A., D.Sc. (Hon) and R. Ellen Magenis, M.D. is a terrific new book written by
a mother of a child with SMS. It's available for ordering now and for information on how to
obtain this book please email Maggie Miller at
maggie@prisms.org.
* Note: These files are in a pdf file format. If you don't already have Adobe Reader, you'll need to
download
and install this program in order to open these files. It's approximately an 8.7MB download
For Parents of Newly Diagnosed
Was your child just diagnosed and you don't know where to begin?
Start here...Please join PRISMS and fill out the membership form, mail, email, or call it in.
With your membership you
will receive a New Parent Packet with important Smith Magenis Syndrome information, parent support
contact, and updated PRISMS information by mail and email.
Membership
Please join us. Your
membership will make a difference.
For Medical Professionals
For Teachers
Stages of Development & Behavior
Is your child's behavior common for SMS children? See characteristics here...