Meet the Advisory Board

Current SMS Research

Research Registry & Tissue Bank

SMS Mouse Model

Meet the Professional Advisory Board

• Ann C.M. Smith, M.A., D.Sc. (Hon) (Chair)
  National Human Genome Research Institute
  National Institutes of Health (NIH), Bethesda, MD
  email: acmsmith@mail.nih.gov


• Kerry Boyd, M.D.
  Bethesda Services, Ontario, Canada


• Sarah Elsea, Ph.D.
  Virginia Commonwealth University, Richmond, VA


• Brenda Finucane, M.S.
  Elwyn Training and Research Institute, Elwyn, PA


• Andrea Gropman, M.D.
  Children's National Medical Center, Washington, DC


• Barbara Haas-Givler, M.Ed., BCBA
  Elwyn Training and Research Institute, Elwyn, PA


• Kyle P. Johnson, M.D.
  Oregon Health & Science University, Portland , OR


• James Lupski, M.D., Ph.D.
  Baylor College of Medicine, Houston , TX


• R. Ellen Magenis, M.D.
  Oregon Health & Science University, Portland, OR


• Lorraine Potocki, M.D.
  Baylor College of Medicine, Houston, TX


• Beth Solomon, M.S.
  W.G. Magnuson Clinical Center
  National Institutes of Health (NIH), Bethesda, MD