:: PRISMS

Privacy Policy

P.R.I.S.M.S., Inc. is committed to protecting your privacy. Our polices and procedures are summarized below To better protect your privacy, we provide this notice explaining our online information practices and choices you can make about the way your information is collected and used. To make this notice easy to locate, we make it available as a link on our home page. We define personal information to include: name, email, address, phone number, survey responses, registry information and content of your correspondence with us.

When you contact us, your email address and other information included in your email may be forwarded by us to the appropriate person(s) within PRISMS for a response. A copy of your correspondence may be retained at the PRISMS home office and also by the responding individual. PRISMS has established and maintains a list of our members including affected individuals, families, friends, relatives, physicians, scientists, contributors and other interested in Smith-Magenis syndrome to allow us to communicate with you. Our list will not be sold, rented or given to any third party for commercial use, nor do we currently expect to release these lists to any third party for any reason. However, if PRISMS sees a need or a possible benefit to you of making your personal information available to a third party, we will not do so without first identifying the recipient and providing a full explanation to you. Information determined to be confidential can only be released by written or verbal permission by the person or organization identified. Verbal permission can only be given for a specific release. Any generally release must be in writing.

PRISMS web site provides links to other sites that may be of interest. PRISMS is not responsible for the privacy practices or content of other such web sites.

PRISMS is firmly committed to maintaining the confidentiality of your personal information in all of our activities and programs.

Every reasonable effort will be made to maintain the security of all personal information in our possession. Access to personal information will be limited to PRISMS board members and other individuals who have a need to use such information in the course of their work on approved projects for and overseen the PRISMS Board of Directors and who have been instructed in the confidentiality requirements of the organization.