• Growth data needed!
  The SMS Research Team at the National Institutes of Health headed by Ann C.M. Smith, M.A., D.Sc. (Hon) is collecting growth measurements to develop growth curves specific for Smith-Magenis syndrome. If you would be willing to share growth data on your child with SMS, please complete this form*.


• Ben's story! 2007 PRISMS Conference "Buliding Bridges of Hope"- click here*.
• 2008 Membership Drive: Membership Form*
• Behavior Management in SMS, by Mary Beall, SMS Parent, M.ED
• Understanding Smith Magenis Syndrome a MS Powerpoint presentation by Sarah Thomen and Mrs. Tina Thomen - click here to view.


• Good Search is a Yahoo-powered search engine with a unique mission – 50% of its advertising revenue, about a penny per search, is shared with the nonprofit organizations selected by its users. The more people who use GoodSearch, the more money will be directed towards PRISMS cause. The sky is the limit! Just go to www.goodsearch.com and be sure to enter PRISMS as the charity you want to support.
• Join the new PRISMS SMS Discussion Group today! The purpose of this new board is to build a knowledge base for SMS - created by parents, professionals and people affected with SMS. Please click here to go to this discussion forum.
• We now have a new streaming video page! We have several videos including the 2 videos shown at our 2005 Cincinnati conference. To access our streaming video page, click here.
• The PRISMS brochure has a new look. Please click here* to download it. (Note: the document is a 1.2MB file)
• All About Me! One Family's Experiences with SMS by Shirley Dechaine with Ann C.M. Smith, M.A., D.Sc. (Hon) and R. Ellen Magenis, M.D. is a terrific new book written by a mother of a child with SMS. It's available for ordering now and for information on how to obtain this book please email Maggie Miller at maggie@prisms.org.

* Note: These files are in a pdf file format. If you don't already have Adobe Reader, you'll need to download and install this program in order to open these files. It's approximately an 8.7MB download

For Parents of Newly Diagnosed
Was your child just diagnosed and you don't know where to begin?
Start here...Please join PRISMS and fill out the membership form, mail, email, or call it in.
With your membership you will receive a New Parent Packet with important Smith Magenis Syndrome information, parent support contact, and updated PRISMS information by mail and email.

Membership
Please join us. Your membership will make a difference.

For Medical Professionals

For Teachers

Stages of Development & Behavior
Is your child's behavior common for SMS children? See characteristics here...